Thursday, 26 April 2012

The end of a nightmare week

Updated by Brian Thank the lord the hospital visits are over for 3 weeks (Touch wood) Today was a fiasco! Left the house at 8.30 to arrive early for a temperature check, before Lynn's first infusion of Ipilimumab (Imunotherapy treatment) scheduled for 10am. Well due to a consent form not being filled out correctly (the 2nd in a week) we did not get out of Addenbrookes until 3.45pm. What should have been approx 2 hours turned into 5 hours 45mins. We did not need that after such an exhausting week! I am so knackered, so just imagine what Lynn is like! She would like to thank all her friends and family for their kind wishes texts & emails. She reads all of them and will reply when she feels well enough.

Wednesday, 25 April 2012

Radiotherapy 25th April - The last one!

Updated by the chauffeur. 5 of 5 DONE! No dramas. Oncology Update. Blood results were very good, liver indicators were poor on the last result, this has now cleared and was a side effect of the Vemurafenib. Confirmation of starting the new treatment Ipilimumab via a 90 minute drip in the morning.(Subject to her temperature being O.K. , it was high today) Lynn has a had a minor cold this week, the Radio therapy has given her a very unusual and unpleasant sensation behind her eyes and in her head. This has made her exhausted and tired. Lynn has said that this has been the worst week of her life for feeling unwell, but is now looking forward to the new treatment and being off the radio therapy.

Radiotherapy 24th April

Updated by Brian 4 of 5 now done. Appointments times were changed at the last minute, so what could have been a long day, turned out to be o.k. Had to wait a long time to have bloods taken. Lynn looked good today, although very tired and had to go to bed a few times during the day. So 5 of 5 tomorrow and Oncology appointment to discuss progress and treatment plan.

Monday, 23 April 2012

Radiotherapy 23rd April

Updated by Brian
Day3 of the radiotherapy done! Lynn is now resting and packed off to bed.

Lynn had a tough Saturday and was the most tired I have seen her since any of her treatment started.
On Sunday after a lot of rest, we both enjoyed a great day out in London supporting Liam running the London Marathon in 4hrs 42mins and meeting up with Helen.
Thanks to all who sponsored him.

Day 4 of 5 tomorrow.

Friday, 20 April 2012

Radiotherapy 20th April

The mask used to keep my head still during the therapy was too tight yesterday. This resulted in jaw pain throughout the night and my sleep was very broken. Treatment was only delayed by 25 minutes today. Slight headache, very quickly wore off. Tired again tonight so have yourselves a great weekend and If all is well we are going to support Liam doing the London marathon on Sunday.

Thursday, 19 April 2012

Radiotherapy 19th April

First dose of Radiotherapy done & dusted.
Appointment one and a quarter hours late, due to senior radiographer putting his signature on the wrong line of the consent form.

Slight headache and tired now, so early bed for me. Night Night!

Wednesday, 4 April 2012

April 2012 Update 1 (amended)

Lynn is in France skiing with her best friends family & godchildren.
Whilst on holiday Lynn had a minor setback and had to be admitted to hospital, where she underwent a CT scan and observation. She is now on new medication and a stronger steroid to help out with the new problems.

She is now out of hospital after her overnight stay and is in good spirits.

Next appointment Addenbrookes Wed 11th April where a revision of treatment will be discussed.