Details of consultation at Addenbrookes

Spirits a lot better than yesterday after our visit with the oncologist. Don't get me wrong there is no magic cure for what I have, however plans are now in place to try and control or even reduce the cancer. He stated that I have low volume cancer in my right lung and a similar amount on my liver. There is a big possibility I have had this for some time, even before the lumps appeared. We now have a better understanding of why the plastic surgeon's attitude was the way it was. We have always been of the opinion that any lumps have to be removed quickly, but this is only for the initial stage 1/2  melanoma, after the secondary spread any removal is purely for cosmetic purposes. Therefore the surgery booked for Dec 1st is to be cancelled at this stage.

There is no recognised effective treatment for melanoma, Chemo has very little effect on the tumours so clinical trials are the way forward. The plan for my treatment is as follows depending on biopsy results.
My original melanoma biopsy will be sent to the USA to check for a specific gene mutation called BRAF V600E. If I have this gene I will qualify for the clinical trial using a drug called Vemurafenib which is a test drug for blocking protein growth in cancer cells.

Sorry, very tired and I will update more later as there is alot of info, going to bed a lot more content.
Lots of love xxxx